The PPI Ignite network is funded by the Health Research Board and Irish Research Council and aims to promote excellence and innovation in PPI. It is a partnership between 7 lead universities and national partners including IPPOSI, Research Charities, and HSE. It is a useful source of information for researchers and public and patient contributors to research.
PPI Ignite Network Ireland
PPI Ignite Network Ireland The PPI Ignite network partners have produced a repository of information, resources, training and learning opportunities aimed at embedding the public and patient voice at the centre of research.
Patient involvement website links
Other resources
Guide for researchers
Useful references
Patient involvement website links
IPPOSI
- The Irish Platform for Patient Organisations (IPPOSI), Science, and Industry. It has a repository of resources relating to PPI in research.
- Visit the resource database and searchable case studies.
EUPATI
European Patients Academy on Therapeutic Innovation (EUPATI). It provides training for patients and patient representatives on the process of medicines research and development.
Cochrane
These videos are designed to be of benefit to people who are interested in understanding and developing Patient and Public Involvement in health and social research.
Other resources
Payments guidance:
- Centre for Engagement and Dissemination – Recognition payments for public contributors:
This policy sets out how the Centre for Engagement and Dissemination supports members of the public to be involved in our work through reimbursing expenses and, in certain circumstances, offering involvement payments. - PPI Ignite Network at DCU Advice: Budgeting for PPI.
- Research Involvement and Engagement Journal
Guide for researchers
The guide aims to help researchers think about the opportunities to involve patients, carers, families using health and social care services, people with lived experience of health conditions, patient advocacy organisations, and members of the public in their research. The guide explains what patient and public involvement (PPI) is, what it involves, and gives suggestions about how to involve contributors in all parts of the research cycle and knowledge translation. It also explains the importance of recognising and valuing PPI and gives examples of good practice.
Guide no 8 Patient and Public Involvement in HSE Research PDF/728 KB
Useful references
- Minogue V, Wells B. 2019. The role of the patient and the public in reducing research waste. BMJ Opinion. August 2019. https://blogs.bmj.com/bmj/2019/08/09/virginia-minogue-and-bill-wells-patients-and-the-public-are-essential-to-reducing-research-waste/
- Minogue V, Cooke M, Donskoy AL, Vicary P, Wells B. ‘Patient and public involvement in reducing health and care research waste.’ Research Involvement and Engagement 2018 4:5
- Minogue V, Donskoy AL, Cooke M. 2019. The legal, governance and ethical implications of involving service users and carers in research. International Journal of Health Care Quality Assurance Volume 32, Issue 5.